Death and Dying Resources
AIDS Information Network
1211 Chestnut Street, 7th Floor, Philadelphia, PA 19107.Runs projects related to education and prevention of HIV/AIDS. Library answers questions by phone, fax or e-mail.
Phone: 215-575-1110 x131 Fax: 215-575-1123 E-mail: aidsinfo@critpath.org.
ALS Association
21021 Ventura Blvd., Suite 321, Woodland Hills, CA 91364.
National information resource for Amyotrophic Lateral Sclerosis (ALS), commonly referred to as Lou Gehrig's disease.
Phone: 818-340-7500 Web site: http://www.alsa.org.
American Academy of Hospice and Palliative Medicine
AAHPM is an organization for physicians who are
committed to furthering and fostering the practice of
hospice/palliative care for the terminally ill and their
families. http://www.aahpm.org
ABCD- Americans for Better Care of the Dying
ABCD is a non-profit coalition of citizens and
professionals united to ensure that public policy
addresses the needs of individuals and families coping
with a fatal illness. http://www.abcd-caring.com
Agency for Health Care Policy and Research
AHCPR is the lead agency charged with supporting
research designed to improve the quality of health care,
reduce its cost, and broaden access to essential
services. http://www.ahcpr.gov
Alzheimer's Association
919 N. Michigan Ave., Suite 1000, Chicago, IL 60611.
The only national voluntary organization dedicated to curing Alzheimer's disease and providing education and support to people with he disease and their caregivers. They can refer you to local chapters and support groups.
American Association for Homes and Services for the
Aging AAHSA represents not-for-profit organizations dedicated
to providing high quality health care, housing and
services to the elderly http://www.aahsa.org
American Brain Tumor Association
2720 River Road, Suite 146, Des Plains, IL 60018.
A not-for-profit organization offering publications addressing brain tumors, their treatment, and coping with the disease. They also maintain a nationwide listing of support groups.
Phone: 800-886-2282 Web site: http://www.abta.org/
American Cancer Society
1599 Clifton Road, NE, Atlanta, GA 30329-4251.
The nationwide, community-based voluntary health organization dedicated to eliminating cancer as a major health problem.
Phone: 800-ACS-2345 Web site: http://www.cancer.org.
The American College of American Society of Internal
Medicine (ACP-ASIM) ACP-ASIM is a medical specialty society designed to enhance the quality and effectiveness of health care by
fostering excellence and professionalism in the practice of medicine. http://www.acponline.org/index.html
The American Geriatrics Society
AGS is a professional organization of health care
providers dedicated to improving and effecting change
for the health and well being of all older adults. http://www.americangeriatrics.org
American Heart Association
7272 Greenville Avenue, Dallas, TX 75231.
Committed to reducing disability and death from cardiovascular diseases and stroke.
Phone: 214-373-6300 or 800-AHA-USA1 (to be connected to your closest affiliate) Web site: http://www.americanheart.org
American Liver Foundation
1425 Pompton Avenue, Cedar Grove, NJ 07009.
National non-profit organization dedicated to preventing, treating, and conquering hepatitis and other diseases of the liver and gallbladder.
Phone: 800-223-0179 Web site: http://www.liverfoundation.org.
American Lung Association
1740 Broadway, New York, NY 10019-4374.
Dedicated to preventing lung disease with a nationwide priority on asthma.
Phone: 212-315-8700 E-mail: info@lungusa.org
Web site: http://www.lungusa.org.
American Medical Association
515 N. State Street, Chicago, IL 60610.
The AMA’s web site contains extensive links to disease- and condition-related sites on the www.
Phone: 312-464-5000 Web site: http://www.ama-assn.org.
American Nurses Association
600 Maryland Ave. SW, Suite 100 West, Washington, DC 20024-2571.
The largest professional organization representing registered nurses in the United States.
Phone: 800-274-4ANA Web site: http://www.nursingworld.org.
American Parkinson Disease Association
1250 Hylan Blvd., Suite 4B, Staten Island, NY 10305.
Committed to serving the Parkinson community through a comprehensive program of research, education and support.
Phone: 718-981-8001 or 800-223-2732 E-mail: apda@admin.con2.com.
American Pain Society
APS is a non-profit multidisciplinary educational and
scientific organization dedicated to serving people in
pain, through research, education, treatment, and
professional practice.http://www.ampainsoc.org
American Society for the Advancement of Palliative
Care ASAP Care is a personal effort to help expedite
the reform of terminal health care practice.
American Society for Bioethics and Humanities
ASBH is a professional society of individuals,
organizations, and institutions interested in bioethics
and humanities. http://www.asbh.org
American Society of Law, Medicine and Ethics
ASLME provides high-quality scholarship, debate, and
critical thought to the community of professionals at the
intersection of law, health care, policy, and ethics.http://www.aslme.org
Approaching Death: Improving Care at the End of Life
This report, from a committee of the Institute of
Medicine, calls for changes to improve end-of-life care,
better training of health care professionals, reform of
outdated laws that inhibit the use of pain-relieving
drugs, and testing of new payment options.
Association of Cancer Online Resources Inc.
ACOR is a non-profit patient advocacy organization
founded to develop, support and represent Internet
based resources for up-to date information to cancer
patients.http://www.medinfo.org
Association for Death Education & Counseling
638 Prospect Ave., Hartford, CT 06105.
ADEC is dedicated to improving the quality of death education and death related counseling and caregiving.
Phone: 860-586-7503 Web site: http://www.adec.org.
Association of Pediatric Oncology Nurses
4700 W. Lake Ave., Glenview, IL 60025.
Phone: 847-375-4724 FAX: 847-375-47777 Web site: http://www.apon.org.
Bereavement and Hospice Support Netline
This is a web page listing bereavement support groups and services, state by state.
Web site: http://www.ubalt.edu/www/bereavement.
Better Health
Better Health is an online interactive forum offering
support and help on a variety of medical concerns and
conditions.
Cancer Net
This site offers a wide range of accurate and credible
information from the National Cancer Institute. http://cancernet.nci.nih.gov
Candlelighters Childhood Cancer Foundation
7910 Woodmont Ave., Suite 460, Bethesda, MD 20814.
Provides support and information to families with children who have cancer, to professionals, and to adult survivors.
Phone: 301-657-8401 or 800-366-2223
Web site: http://www.candlelighters.org
Caregiver Network
Based in Toronto, Canada the goal of CNI is to be a
national single information source to make your life as
a caregiver easier.http://www.caregiver.on.ca:80/index.html
Caregiver Survival Resources
Caregiving is becoming a significant issue for many
people. This resource provides help to others to cope
with the demands of caregiving. http://www.caregiver911.com/
Catholic Health Association of the United States
Catholic-sponsored health organizations provide the
aged and chronically ill population with a broad
spectrum of high-quality professional services.http://www.chausa.org
Center to Improve Care of the Dying
CICD is an, interdisciplinary team of committed
individuals, engaged in research, public advocacy, and
education activities to improve the care of the dying
and their families.
Children’s Hospice International
2202 Mt. Vernon Ave., Suite 3C, Alexandria, VA 22301.
Provides medical and technical assistance, research and education for children with life threatening conditions and their families.
Phone: 702-684-0330 E-mail: chiorg@aol.com
Web site: http://www.chionline.org
Choice In Dying
200 Varick Street, New York, NY 10014.
Provides information about advance-directives (Living Wills and Durable Powers of Attorney for Health Care). Call for state-specific forms.
Phone: 800-989-WILL.
Chronicle of Philanthropy
The newspaper of the non-profit world.http://www.philanthropy.com
Clinical Care Options-HealthCare Communications
Group A state of the art medical resource for healthcare
professionals.
The Commonwealth Fund
The Commonwealth Fund engages in independent
research on health and social policy issues. http://www.cmwf.org/
The Cochrane Pain, Palliative Care and Suportive Care
Collaborative Review Group
The work of the PaPaS includes the preparation,
maintenance & dissemination of systemic reviews of
randomized controlled trials of interventions concerned
with pain and palliative care.http://www.jr2.ox.ac.uk/Cochrane/
The Compassionate Friends
PO Box 3696, Oak Brook, IL 60522-03696.
A self-help organization offering friendship and understanding to parents and siblings following the death of a child. They have 580 chapters nationwide.
Phone: 630-990-0010. Web site: http://longhorn.jjt.com/~tcf_national/
Death and Dying
Death & Dying was the inspiration of Kelly, the owner in June of 1997.
The mission at Death and Dying is to provide you with comfort, support, and education about issues surrounding death at times of apprehension, confusion, and sorrow as well as at times of
understanding, growth, and serenity. http://www.death-dying.com/aboutus.html
Death, Dying and Grief Resources
This web site represents a large and comprehensive
collection of Internet resources with a holistic
perspective of the death process.
Death NET
DeathNET is an international archive specializing in all
aspects of death and dying with a sincere respect for
every point of view, encompassing the legal, medical,
and cultural aspects of human mortality.
The Dougy Center
PO Box 86582, Portland, OR 97286.
Provides support groups for grieving children that are age-specific (3-5, 6-12, teens) and loss-specific (parent death, sibling death, survivors of homicide/violent death, survivors of suicide). The Center also provides consultations to schools.
Phone: 503-775-5683. E-mail: help@dougy.org
Dying Well
Defining Wellness through the 'End of Life': Resources for patients and families facing life-limiting illness. http://www.dyingwell.com/
Eldercare Web
Eldercare Web, is a collection of reviewed links to on-line information about health, financing, housing, and other issues related to the care of the frail elderly.
Elizabeth Kubler Ross, M.D., "On Death and Dying"
Elizabeth Kubler-Ross, M.D. is widely recognized as one of the foremost authorities in the field of death & dying. "On Death and Dying", is required reading in most major medical and nursing schools and graduate schools of psychiatry and theology. http://www.doubleclickd.com/kubler.html
Funeral and Memorial Societies of America
FAMSA is dedicated to a consumer’s right to chose a meaningful, dignified, affordable funeral.
Web site: http://www.funerals.org/famsa
Gay Men’s Health Crisis
129 W. 20th street, New York, NY 10011.
The nation’s oldest and largest AIDS service organization. GMHC offers a variety of services, including legal assistance, nutrition counseling, family services and crisis intervention.
Phone: 212-807-6664 AIDS Hotline: 212-807-6655.
Gilda’s Club
195 W. Houston Street, New York, NY 10014.
Psychological support community for people with cancer, their families and friends, offering support, meditation and networking groups, potluck suppers, and social events. The Club also offers special programs for children whose parents or family members have cancer or who have cancer themselves. There are ten affiliates across the country.
Phone: 212-647-9700 E-mail: mannheim@walrus.com.
GriefNet
A comprehensive gateway to bereavement and grief-related resources on the www.
Web site: http://www.rivendell.org.
The Growth House
A comprehensive international gateway to resources on the web related to life-threatening illnesses and end-of-life issues.
Web site: http://www.growthhouse.org.
Hamot Medical Center
HMC is a strongly committed to professional education and in
September 1998 hosted the First Annual Doctor's Death and
Dignity Conference. http://www.hamot.org/highlight_proceed.htm
Healthfinder
Consumer healthcare information from the U.S. Government, with selected online publications, databases, web sites and support groups.
Web site:
Hemlock Society USA and PRO-USA
For those who support the rights of the terminally ill to choose
death with dignity, who support personal control and
autonomy in end-of-life decisions, and who believe that laws
should allow a terminally ill person the choice of medical
assistance in hastening their death.
http://www.hemlock.org/hemlock/index.html
Hospice Foundation of America
2001 S Street NW, Suite 300, Washington, DC 20009.
Sponsors an annual Living with Grief teleconference series, a monthly bereavement newsletter and other publications.
Phone: 202-638-5419
In Loving Memory
1416 Green Run Lane, Reston, VA 20190.
Provides mutual support, friendship and help for parents who have lost a child.
Phone: 703-435-0608.
Innovations in End-of-Life Care
Innovations is an international peer-reviewed journal and
on-line forum highlighting promising practices that improve
end-of-life care. http://www.edc.org/lastacts/
International Association for the Study of Pain
IASP is open to scientists, physicians, dentists, psychologists,
nurses, physical therapists, and other health professionals
actively engaged in pain research and to those who have an
interest in the treatment of pain. http://www.pslgroup.com/dg/1ff02.htm
Kids Home
A web page just for kids with cancer, sponsored by the National Cancer Institute.
Web site: http://wwwicic.nci.nih.gov/occdocs/KidsHome.html.
Last Acts
Robert Wood Johnson Foundation
PO Box 2316
Princeton, NJ 08543-2316
Last Acts is a call-to-action campaign designed to improve care at the end of life. Its goals are to bring end-of-life issues out into the open and to help individuals and organizations pursue the search for better ways to care for the dying.
Phone: 609-452-8701
E-mail: mail@rwjf.org
Web site: http://www.lastacts.org
Longwood College Library: Doctor Assisted Suicide--a guide
to WEB Sites and the Literature The selections gathered here provide varied points of view, some history as well as print and electronic coverage on PAS.http://web.lwc.edu/administrative/library/suic.htm
Losing Lisa: Living with death-one family's journey Plain
Dealer reporter, Connie Schultz, chronicles Lisa Hearey's last
four months of her life and her family for a full year after she
died. http://www.cleveland.com/living/health/cancer/lisa/intro.phtml
Leukemia Society of America
600 Third Ave., New York, NY 10016.
Dedicated tot he cure of leukemia and it’s related cancers – lymphoma, multiple myeloma and Hodgkin’s disease – and to improve the quality of life of patients and their families.
Phone: 212-573-8484
Med Help
A non-profit organization founded to assist those in need of medical information written in non-technical terminology.
Web site: http://www.medhelp.org
Medical College of Wisconsin Palliative Care Program
This program is committed to improving care for the dying in
America through the development, implementation and
dissemination of innovative education and clinical care
programs. http://www.mcw.edu/pallmed/
Medicare Rights Center
The Medicare Rights Center (MRC) provides free counseling
services to Medicare beneficiaries who cannot afford private
assistance for Medicare-related issues. http://www.medicarerights.org
Memorial Sloan Kettering Cancer Center
MSKCC's web site provides a wide range of information for
medical professionals, patients, their families, and the
general public.http://www.mskcc.org
Multiple Sclerosis Association
706 Haddonfield Rd. Cherry Hill, NJ 08002.
Provides direct care services to those with MS, including a national toll-free hotline, peer counseling, support groups, therapeutic equipment loan program, educational literature, and symptom management therapies.
Phone: 800-833-4672.
NHO
1901 N. Moore St., Suite 901, Arlington, VA 22209.
NHO provides referral services to link individuals with hospices in their local communities, and various educational programs.
Phone: 703-243-5900 Web site: http://www.nho.org
The National Institute on Aging
NIA promotes healthy aging by conducting and supporting
biomedical, social, and behavioral research and public
education.
National Kidney Foundation
30 East 33rd Street, New York, NY 10016.
Supports research projects and sponsors community programs in treatment, service, education and prevention of diseases of the kidney and urinary tract.
Phone: 800-622-9010 Web site: http://www.kidney.org.
National Parkinson Foundation
1501 NW 9th Ave., Miami, FL 33136.
Committed to finding the cause and cure for Parkinson’s disease and other allied neurological disorders through research, to provide diagnostic and therapeutic services, to improve the quality of life for patients and caregivers, and to educate people about Parkinson’s disease.
Phone: 800-327-4545
National Stroke Association
96 Inverness Drive East, Suite 1, Englewood, CO 80112-5112.
Dedicated entirely to the prevention, treatment and research of stroke, and support for stroke victims and their caregivers.
Phone: 303-649-9299 Web site: http://www.stroke.org.
The Never-Ending Squirrel Tale
PO Box 1562, Columbia, MD 21044-0562.
Practical tips and encouragement for the parents of kids with cancer.
Web site: http://www.squirreltales.com
Pediatrics Home Care Guide
Hosted by the Pediatric Oncology Group, this site is dedicated to providing information useful to those caring for children with cancer at home.
Web site: http://www.hmc.psu.edu/depts/pedsonco/Homeguide.html
Renal Nurses Information Page
http://www.doliver.com/pages/nurse.html
The Retired Officers Association TROA is an independent nonprofit organization exclusively operated to benefit uniformed services personnel and their families and survivors.http://www.troa.org/
Tragedy Assistance Program for Survivors
2001 S Street, NW, Suite 300, Washington, DC 20009.
TAPS provides services who have lost a loved one in the line of military duty, through peer support, crisis intervention (on-call 24 hours per day), case workers and grief counseling referrals to help families and military personnel cope.
Phone: 800-959-TAPS. E-mail: TAPSHQ@aol.com.
Webster's Death, Dying and Grief Guide
This web site represents a large and comprehensive collection of Internet resources with a holistic perspective - one that would be helpful to anyone seeking a wider vision and understanding of the death process.
Widowed Persons Service
4270 Chicago Drive SW, Grandville, MI 49418.
A self-help support group for men and women who have experienced the death of a spouse, offering day and evening meetings, seminars, social activities and public education of the experience of being widowed.
Phone: 616-538-0101. 
